daniel said...
Hi, there; I just thought I'd say "thanks" for writing about Aicardi Syndrome, but more importantly, sharing your journey of giving. Our almost-one-year-old daughter, Evelyn, has Aicardi Syndrome, and the connections that we've made with other families touched by AS have been invaluable, both in finding information, but also to find understanding shoulders to lean on. The Aicardi Syndrome Foundation is a great facilitator of that. It really does make a huge difference.You can read more about Evelyn on her blog, http://blog.evelynsarmy.org/. :-)Regards,Daniel
Monday, May 12, 2008
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